Browse by subject
Whether you want to learn more about fundraising and communications or research and drug development, we have the resources for you.
Simply browse by subject to find free online resources in your area of interest and get started! You don’t have to complete the course in one sitting. You can come and go as you please, and view how far you have gotten with the convenient progress bar.
Don’t know where to begin? Explore our new and updated e-learning modules!
The Resources Hub is managed and maintained by the rare disease charity, Beacon for Rare Diseases.
New and updated resources

10 key platforms patient groups use to enhance their capabilities
Learn 10 key platforms that patient groups use to help them grow in knowledge, capacity and confidence. View them now to see what each platform can help you achieve!

Boost your patient group’s productivity using AI
In this webinar, you'll explore how rare disease patient groups can use AI to boost their productivity.

Decoding diagnostics webinar series
Through a series of webinars and discussion sessions, we’ll explore the fundamental principles of genetic testing, delve into the methods and applications available, and provide practical insights on accessing, interpreting and supporting genetic diagnostic results.
Browse by subject
Building connections
Communications
Data
Drug repurposing
Fundraising
Patient group development
Research and drug development
Supporting community
Building connections and collaborations

Collaborating with medical professionals
In this course, you'll learn how to foster collaborative interactions with medical professionals. Discover ways to get involved with medical education and outreach and learn how these interactions can build value for both patient groups and medical professionals alike!

Maximising engagement with HCPs
In this webinar, you'll explore the practical things that patient groups (no matter what size or capacity) can do to engage with HCP’s in the most beneficial way. Learn what other groups are doing to effectively and sustainably engage with medical professionals.

Patient group and charity collaborations
In this course, you'll learn the steps involved in setting up a collaboration and the strategic questions which need to be asked. Explore how to effectively work together and adapt goals and priorities, so you can navigate potential issues with confidence!
Communications

Ensuring inclusive communication around genetics
In this webinar, you'll explore the role genetics play as a tool to accessing diagnoses and understanding rare conditions. Learn the barriers to understanding genetic diseases and discussing their inheritance.
Data

Building a rare disease registry
In this course, you'll learn how to use a patient registry and apply the data contained within it to make an impact. Explore the steps involved in setting up a patient registry and the important considerations for maintaining one.
Drug Repurposing

Drug Repurposing
In this course, you'll explore how drug repurposing can be a more efficient and cost effective way to develop treatments for rare diseases. Learn the benefits and challenges associated with drug repurposing, the important considerations to make when setting up a drug repurposing project and how patient groups can support these projects!
Fundraising

The fundamentals of fundraising without a fundraiser
This webinar covers the fundamentals of fundraising for organisations that don't have a dedicated fundraiser.
Patient group development

10 key platforms patient groups use to enhance their capabilities
Learn 10 key platforms that patient groups use to help them grow in knowledge, capacity and confidence. View them now to see what each platform can help you achieve!

7 tips for recruiting trustees to your rare board
Learn 7 top tips for recruiting trustees to your rare board from Katherine from Getting OnBoard! Discover how to attract a diverse Board of Trustees who offer the unique skills and perspectives needed to ensure the success of your organisation.
Research and drug development

Access and reimbursement
In this course, you'll learn how patient access to new treatments is obtained and how the HTA process works. Discover where and how patient groups can contribute to the process and when patient groups should start to consider access.

Building your patient group data to drive research
In this webinar, you'll explore how patient groups can utilise technologies and opportunities to put patient datasets at the forefront of cutting edge research.

Decoding diagnostics webinar series
Through a series of webinars and discussion sessions, we’ll explore the fundamental principles of genetic testing, delve into the methods and applications available, and provide practical insights on accessing, interpreting and supporting genetic diagnostic results.
Supporting your community

Boost your patient group’s productivity using AI
In this webinar, you'll explore how rare disease patient groups can use AI to boost their productivity.