Contact us

The Resources Hub exists solely for you. We upload trainings and resources that help patient groups reach their goals, whatever they may be. Our remote learning platform guides patient groups through every stage of their rare disease journey to avoid having to reinvent the wheel. The Hub makes training online fun through engaging, free resources that are tailored to you and your objectives.

If you’d like to contribute a guide, video or course to The Hub, get in touch with us at

You can also email our Projects Team at if you’d like to learn more about Beacon’s patient group trainings or have ideas for future training opportunities.

The Resources Hub is only possible thanks to the generosity and support of our 2022 funders and rare community. If you’d like to discuss funding, collaboration or pro-bono opportunities on The Hub, email Beacon’s Fundraising Officer, Faith at

We’re always happy to help and excited to hear from you!

The Resources Hub is managed and maintained by the rare disease charity, Beacon for Rare Diseases.