Event recordings
If you couldn’t attend a Beacon event due to location, cost or simply time, don’t fret! You can catch up on all the action by watching our event recordings on-demand.
Now you can watch Beacon’s Drug Repurposing Conference, Rare Disease Showcase Series, webinars and more in the comfort of your own home.
Drug repurposing conferences
Rare disease showcases
Webinars
New recordings
How to choose the next you: where to start with succession planning
In this webinar, hear real examples of rare disease patient groups who have navigated through a leadership transition. Learn from their experience and come away with ideas on how to implement a succession plan in your own organisation.
Employing staff to drive your patient group towards its goals
In this webinar, learn how to know when your group is ready for paid staff, what you need in place before you can hire someone and how to attract the right people for your organisation.
How to successfully recruit and manage volunteers
In this webinar, learn the practical ways in which you can successfully recruit new volunteers and how to manage and retain these individuals.
Drug Repurposing Conferences
Drug Repurposing for Rare Diseases 2021
Drug Repurposing for Rare Diseases 2021, a two-day virtual event, looked at what drug repurposing is, how to find treatments through drug redevelopment, overcoming challenges in getting treatments to patients and much more.
Drug Repurposing for Rare Diseases 2020
On 24th February 2020, we held our seventh annual Drug Repurposing for Rare Diseases Conference, welcoming 125 people to the event.
Drug Repurposing Conference 2019
On 27th February 2019, we held our sixth annual Drug Repurposing for Rare Diseases Conference, welcoming over 100 people to the event.
Drug Repurposing for Rare Diseases Conference 2018
On 27th February 2019, we held our fifth annual Drug Repurposing for Rare Diseases Conference at the Royal College of Nurses, London.
Drug Repurposing for Rare Diseases 2017
On the 28th February 2017, we held our fourth annual Drug Repurposing for Rare Diseases Conference at the Royal College of Nursing in London.
Rare Disease Showcases
The International Rare Disease Showcase
The International Rare Disease Showcase brought the global rare disease community together to celebrate innovative projects across the UK and far beyond.
The Virtual Rare Disease Showcase
The Virtual Rare Disease Showcase was a three-day virtual conference which celebrated digital and technological rare disease innovations taking place around the UK and wider world.
The Manchester Rare Disease Showcase
On Tuesday 8th October 2019, we hosted The Manchester Rare Disease Showcase at Bridgewater Hall, Manchester.
The Cambridge Rare Disease Showcase 2019
On Thursday 8th August 2019, we hosted our annual Cambridge Rare Disease Showcase at Espresso Library, Cambridge. Joining us were over 60 delegates, representing all facets of the rare disease community.
The Glasgow Rare Disease Showcase
On Wednesday 10th October we hosted The Glasgow Rare Disease Showcase, welcoming 78 delegates from across the UK to hear about the extensive work taking place in Scotland’s thriving rare disease community.
The Cambridge Rare Disease Showcase 2018
On Thursday 16th August 2018, 40 delegates from the across the rare disease community joined us to hear about the latest developments taking place in Cambridge.
Webinars
How to choose the next you: where to start with succession planning
In this webinar, hear real examples of rare disease patient groups who have navigated through a leadership transition. Learn from their experience and come away with ideas on how to implement a succession plan in your own organisation.
Employing staff to drive your patient group towards its goals
In this webinar, learn how to know when your group is ready for paid staff, what you need in place before you can hire someone and how to attract the right people for your organisation.
How to successfully recruit and manage volunteers
In this webinar, learn the practical ways in which you can successfully recruit new volunteers and how to manage and retain these individuals.
Maximising engagement with HCPs
Tune into this webinar to explore the practical things patient groups can do to make sure they are engaging with HCP’s in the most beneficial way.
Measuring Quality of Life
This webinar explores the ways to measure quality of life in rare diseases for the purpose of health technology assessment, and the ways that patient organisations can get involved in the process.
Navigating Health Technology Assessments
In this webinar, hear how to prepare for HTA and we will hear from patient groups on their unique experiences of navigating the process.
Understanding health economics: preparing your patient group for HTA
Learn the basics of health economics to understand drug reimbursement and how to get prepared for health technology assessments
Ensuring inclusive communication around genetics
In this webinar we highlight the role of genetics as a tool to accessing diagnoses and understanding of rare conditions, and a barrier to understanding and discussing these diseases and their inheritance.
Natural history studies for rare diseases
In this webinar, hosted in collaboration with Healx, we explore the importance of natural history studies to the rare disease community and how the data from such studies can be used to improve clinical trials and the pathway to therapeutic development.