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Webinar series: Empowering patient groups in rare disease research

With 80% of rare conditions still lacking approved treatments, accelerating research progress is a top priority for many patient organisations.

Funding is essential to drive these efforts, but so are patient groups. Funders are now prioritising the use of real-world evidence in applications, which means that patient organisations have an even greater opportunity to make a meaningful impact.

However, navigating the complexities of research funding can be challenging. That’s why we’ve developed this two-part webinar series to explore the current funding landscape and show how patient groups can add significant value to research applications.

What will you learn in this webinar?

  • The types of research you could support, beyond just clinical trials.
  • The different funding streams available, from government bodies to commercial funding from industry.
  • The opportunities and limitations associated with each funding stream.
  • A case study from Toni Mathieson on her experience securing funding for multiple research and collaborative projects.
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Resource type

Webinar

Duration

1.5h

Last updated

December 2024

Resource type

Webinar

Duration

1.5h

Date

December 2024

When is Part 2?

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Part 1 took place on the 12th of December 2024. Part 2 will take place on the 23rd of January 2025!

While part 1 provided an overview of the current funding landscape, part 2 aims to provide an understanding on how to contribute to research funding applications as a patient group.