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How to launch a podcast for your rare condition

Launching a podcast is a powerful way in which a patient group can raise awareness, share experiences, and strengthen connections across the rare disease community. Through storytelling and conversation, you can educate the public, amplify diverse voices, and help listeners understand what it means to live with a rare condition.

This course will guide you through every stage of the process, from planning and recording to editing, publishing, and promoting your podcast.

You’ll find practical tools, examples and tips to help you launch your podcast with confidence. By the end, you’ll have everything you need to turn your ideas into an engaging podcast that empowers your community and makes the voices in your community heard!

With thanks to:

Beacon volunteer Natalie Lough wrote this course on a voluntary basis. At the time of writing, Natalie was studying a Honours degree in Microbiology, Immunology and Medical Cell Biology at the University of Western Ontario in Canada!

We’d also like to thank the funders of the Empowerment programme 2024/2025.

Resource type

Course

Skill level

Beginner

Duration

1h

Last updated

January 2026

Resource type

Course

Skill level

Beginner

Duration

1h

Last updated

January 2026

What will you learn?

  • The benefits of launching a rare disease podcast: how it can increase awareness, empower patients, and connect communities

 

  • Practical advice on how you can launch a podcast, how to reach out to guests and what equipment and time you might need
  • Examples of rare disease podcasts that you can learn from

 

  • Ways to promote a new podcast to the patient group’s community and wider public

Who is this course for?

This course is for all rare disease patient groups who want to launch a podcast about their rare condition to help raise awareness of what it’s like to live with their rare disease (physically, emotionally, and mentally) by amplifying their community’s diverse voices and experiences.

These individuals include:

  • Patient groups members interested in developing advocacy campaigns and need a clear roadmap for launching and sustaining a podcast.
  • Researchers and medical professionals seeking new platforms to share breakthroughs, offer guidance and connect / learn from the patient community.