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The Virtual Rare Disease Showcase

With the world transformed by a global pandemic, 2020’s showcase was naturally, a little different.

Taking place entirely online, our 2020 event – The Virtual Rare Disease Showcase – illustrated the impact that technological and digital advancements are having on the future of rare disease treatment and care.

Whilst the format may have changed; crucially, the Rare Disease Showcase remained an event for everyone – whether patient group, clinician, pharmaceutical representative, consultant, researcher, or student – if you care about rare, then this was the event for you!

The Virtual Showcase was designed to be a unique event, with interactive sessions taking place over a three-day period (17th to 19th November), including conversations on telemedicine, artificial intelligence, patient group innovations, and the impact of Covid-19 on rare diseases.

Our online stage included talks from across the rare disease spectrum, supplemented by roundtable discussions, networking sessions, one-to-one video chats, virtual exhibitions and more.

Resource Content

Main stage webinars
An unprecedented challenge: the impact of COVID-19 on rare diseases
The rise of telemedicine and remote care: a new reality?
Going digital: opportunities to build and engage new communities
A new era: Re-envisioning the clinical trial landscape post COVID-19
Lightning Talk Sessions
How to make the most of digital networking – Tarquin Bennett-Coles
Lightning round one
Lightning round two
Breakout Sessions
Clinical trials post Covid-19: how do we respond?
Building patient communities in an isolated world
The importance of language and communications in healthcare
Genomics 101 – Gemma Chandratillake
Harnessing the voice of youth in rare disease advocacy
Creatively capturing the rare disease patient voice
The value of patient input in creating digital endpoints
Access challenges: the rare disease patient experience
Engaging diverse communities with your rare disease