Webinar series: Empowering patient groups in rare disease research

With 80% of rare conditions still lacking approved treatments, accelerating research progress is a top priority for many patient organisations.

Funding is essential to drive these efforts, but so are patient groups. Funders are now prioritising the use of real-world evidence in applications, which means that patient organisations have an even greater opportunity to make a meaningful impact.

However, navigating the complexities of research funding can be challenging. That’s why we’ve developed this two-part webinar series to explore the current funding landscape and show how patient groups can add significant value to research applications.

What will you learn in this webinar?

The types of research you could support, different funding streams and the opportunities and limitations of each
How patient groups can meaningfully contribute to research funding applications, increasing the likelihood of funding success
Three case studies covering the experience of Niemann-Pick UK, The Lily Foundation and The Association of Medical Charities (AMRC) in participating in research projects and funding applications for rare disease research