Understanding the UK Rare Disease Framework
The Framework sets the priorities for all four UK nations (England, Scotland, Wales and Northern Ireland) to help improve the:
- Time to diagnosis
- Awareness of rare conditions with healthcare professionals
- Care coordination and access to specialist care
- Access to treatment and drugs
The Framework outlines how the UK will address these challenges over the next 5 years.
Patient groups are time-scarce and do not have the capacity to read 38 pages of the new UK Rare Disease Framework to understand what it means for them.
Our guide summarises the Framework’s information that patient groups, advocates and patients need to know, saving leaders valuable time and energy.
Patient group leaders can now get the information they need and want in under an hour!
Resource type
Course
Skill level
Beginner
Duration
1 hour
Last updated
January 2021
Resource type
Course
Skill level
Beginner
Duration
1 hour
Last updated
January 2021
What will you learn in this course?
- The background to the UK Rare Disease Framework
- The four priorities of the Framework
- The five underpinning themes of the Framework
Who is this course for?
This course is for rare disease advocates, patients and patient groups in the UK who want to better understand the Framework’s key priorities and themes, but don’t have the time to read a full policy document.
