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If you want to be amongst the first to hear when a new resource is added to The Hub, we highly encourage you to subscribe to The Beacon Bulletin.

The Resources Hub is managed and maintained by the rare disease charity, Beacon for Rare Diseases, which means all updates regarding The Hub’s resources are announced through the charity’s main channels.

The Beacon Bulletin will not only give you updates about newly released trainings on The Hub, but also first access to the charity’s upcoming virtual, guided and in-person patient group trainings – talk about a win-win!

Subscribe to The Beacon Bulletin to see what you can achieve on and off The Hub!