Wellbeing Hub

Rareminds Wellbeing Hub can help you navigate some of the more common emotional challenges that are often shared across rare conditions.

As we know, being diagnosed with, living with, or caring for someone with, a rare condition creates many psychological challenges.

Whether you have been living with your condition for some time, or if you are currently facing a particularly emotionally challenging period, we hope you find something in their Wellbeing Hub that will be helpful.

View resources and information on the following topics to help you live as well as possible with your rare condition:

Diagnosis
Uncertainty, change & loss
Relationships
You & your feelings
Navigating healthcare
Sources of support

View Wellbeing Hub

Rareminds mental health podcast

Rareminds have launched a new podcast where they talk about all things rare conditions and mental health!

They speak with a wide range a people impacted by rare conditions to explore what the challenges are, how they’ve coped with those challneges and how they’re looking after their mental health and wellbeing.

Listen now!

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