Building an international patient registry
This webinar focuses on how to set up or expand patient registries on a global level.
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Resource type
Webinar
Duration
1.5 hours
Last updated
January 2020
Resource type
Webinar
Duration
1.5 hours
Date
January 2020
What will you learn in this webinar?
As experts on international registries, our speakers from Pulse Infoframe discuss:
- The benefits of running an international registry
- Key considerations, rules and regulations that are involved with international registries
- Associated challenges
- Top tips for patient groups looking to develop these kinds of databases
Who is this webinar for?
This webinar is for patient groups who want to establish an international rare disease patient registry and are interested in learning the benefits, challenges and key considerations of building an international database.
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