How patient groups can get involved in research and trial design
Patient groups can play an important role throughout the different stages of clinical (and pre-clinical) research.
Patient groups are often best placed to play these roles, as they have a detailed understanding of the disease, good communication with patients and access to lots of patient information.
Patient groups have a key role in making sure the patient experience is considered when scientists are planning, running and analysing a clinical trial and can help ensure that treatments that are valuable to patients are developed.
With thanks to:
Resource type
Course
Skill level
Intermediate
Duration
1.5 hours
Last updated
May 2022
Resource type
Course
Skill level
Intermediate
Duration
1.5 hours
Last updated
May 2022
What will you learn in this course?
- Patient group case studies of involvement in research, trial design and drug development
- Research priorities, design and planning
- Recruiting patients and managing participation
- Research conduct and operations
Who is this course for?
- Increase awareness of where and how patient groups can get involved to have the greatest impact on research and trial design
Suggested pre-reading
We recommend that you enroll in our course “Rare disease research and trial design” before enrolling in this course to learn:
- The basics of clinical research
- Pre-clinical research
- Clinical research
- Ethical considerations
- Clinical trials for rare diseases: challenges and solutions
You may also be interested in…
Glossary
Pre-clinical research
Pre-clinical research is all medical research that does not require human participants. Scientists conduct pre-clinical research ahead of clinical trials in people, and may use cells, animals or computer models
Glossary
Clinical trial
A test in which doctors give patients a new treatment to develop high quality evidence as to whether it is safe and effective at treating their disease