Raregivers Emotional Journey Map
The Raregivers™ Emotional Journey Map Guidebook is an evidence-based resource.
This guidebook is backed by 287 peer-reviewed studies, expert stakeholder reviews, and insights from global leaders in mental health and rare disease care.
What’s included in the guidebook?
Each stage of caregiving mentioned in the guidebook offers a clear description of the common experiences caregivers may face, along with Raregivers Relief Tips and practical exercises to help ease the emotional journey.
The guidebook introduces helpful skills and resources to support connection and understanding throughout the caregiving experience.
About Raregivers
Raregivers is a global network providing emotional support and mental health services to caregivers, patients, and professionals in rare, chronic, and complex disease communities.
Focused primarily on women, Raregivers offers psychosocial training, transformative retreats, and a multilingual peer support network to over 21,000 families in 33 countries.
The resource shared here is an external source that Beacon had no involvement in creating. Whilst we believe this resource will be of benefit to our community, we cannot verify the accuracy, completeness, or reliability of the information provided in this resource. Sharing this resource does not imply endorsement, approval, or affiliation, nor have we received any compensation or benefit in return for sharing it. Please exercise your own judgment, and if necessary, consult with a qualified professional when relying on external information.