Courses

Our written courses fall under three categories to ensure optimal learning: beginner, intermediate and advanced. Feel free to gauge your level of knowledge on topics by enrolling in a beginner course to start and slowly work your way up.

Not sure where to begin? Explore our new and updated courses to see which topics spark your interest!

Please note: Findacure rebranded as Beacon: for rare diseases in February 2022. Mentions of Findacure may still be seen in some courses.

New and updated courses

Course

Developing medical guidelines

In this course, you'll learn what medical guidelines are and why they're important for rare diseases. Discover how to develop and publish your own medical guidelines within the NICE framework now!

Course

Harnessing the power of social media

Watch this top tip video guide to navigate social media platforms with confidence! Learn more about the different platforms and discover top tips for creating engaging content that yields meaningful results on them.

Course

How do scientists make a genetic diagnosis?

In this course, you'll learn how scientists make a genetic diagnosis. Explore DNA sequencing for genetic testing, such as Sanger Sequencing and Next-Generation Sequencing, and Chromosomal testing, such as karyotyping, fluorescence in situ hybridisation (FISH) and Chromosomal microarray. Enroll now!

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Course

Developing medical guidelines

In this course, you'll learn what medical guidelines are and why they're important for rare diseases. Discover how to develop and publish your own medical guidelines within the NICE framework now!

Course

Harnessing the power of social media

Watch this top tip video guide to navigate social media platforms with confidence! Learn more about the different platforms and discover top tips for creating engaging content that yields meaningful results on them.

Course

How do scientists make a genetic diagnosis?

In this course, you'll learn how scientists make a genetic diagnosis. Explore DNA sequencing for genetic testing, such as Sanger Sequencing and Next-Generation Sequencing, and Chromosomal testing, such as karyotyping, fluorescence in situ hybridisation (FISH) and Chromosomal microarray. Enroll now!

Course

How does genetic variation lead to a rare disease?

In this course, we go a step further from our Introduction to genetics course to look at different types of DNA mutations, as well as fertilisation and reproduction. Enroll now to learn about DNA replication, transcription, translation, chromosomal abnormalities and more!

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Beginner courses

Course

7 tips for recruiting trustees to your rare board

Learn 7 top tips for recruiting trustees to your rare board from Katherine from Getting OnBoard! Discover how to attract a diverse Board of Trustees who offer the unique skills and perspectives needed to ensure the success of your organisation.

Course

Getting the most out of Facebook

In this course, you'll explore if Facebook is right for your patient group. Learn how to set up a Facebook page, when you should post on Facebook, 8 top tips for getting the most out of the platform and more!

Course

Getting the most out of Instagram

In this course, you'll learn Instagram's benefits for patient groups, the ways you can post on the platform and discover 8 top tips to help you improve your account in 1 hour or less!

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Course

7 tips for recruiting trustees to your rare board

Learn 7 top tips for recruiting trustees to your rare board from Katherine from Getting OnBoard! Discover how to attract a diverse Board of Trustees who offer the unique skills and perspectives needed to ensure the success of your organisation.

Course

Getting the most out of Facebook

In this course, you'll explore if Facebook is right for your patient group. Learn how to set up a Facebook page, when you should post on Facebook, 8 top tips for getting the most out of the platform and more!

Course

Getting the most out of Instagram

In this course, you'll learn Instagram's benefits for patient groups, the ways you can post on the platform and discover 8 top tips to help you improve your account in 1 hour or less!

Course

Getting the most out of LinkedIn

In this course, you'll explore the benefits of having a LinkedIn company profile for your patient organisation. Gain 8 top tips to help you improve your account in one hour or less!

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Intermediate courses

Course

Collaborating with medical professionals

In this course, you'll learn how to foster collaborative interactions with medical professionals. Discover ways to get involved with medical education and outreach and learn how these interactions can build value for both patient groups and medical professionals alike!

Course

Developing medical guidelines

In this course, you'll learn what medical guidelines are and why they're important for rare diseases. Discover how to develop and publish your own medical guidelines within the NICE framework now!

Course

Drug Repurposing

In this course, you'll explore how drug repurposing can be a more efficient and cost effective way to develop treatments for rare diseases. Learn the benefits and challenges associated with drug repurposing, the important considerations to make when setting up a drug repurposing project and how patient groups can support these projects!

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Course

Collaborating with medical professionals

In this course, you'll learn how to foster collaborative interactions with medical professionals. Discover ways to get involved with medical education and outreach and learn how these interactions can build value for both patient groups and medical professionals alike!

Course

Developing medical guidelines

In this course, you'll learn what medical guidelines are and why they're important for rare diseases. Discover how to develop and publish your own medical guidelines within the NICE framework now!

Course

Drug Repurposing

In this course, you'll explore how drug repurposing can be a more efficient and cost effective way to develop treatments for rare diseases. Learn the benefits and challenges associated with drug repurposing, the important considerations to make when setting up a drug repurposing project and how patient groups can support these projects!

Course

How patient groups can get involved in research and trial design

In this course, you'll learn the various stages where patient groups can get involved in research and trial design using expert patient group case studies from those who have successfully done so with their organisation.

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Advanced courses

Course

Access and reimbursement

In this course, you'll learn how patient access to new treatments is obtained and how the HTA process works. Discover where and how patient groups can contribute to the process and when patient groups should start to consider access.

Course

Building a rare disease registry

In this course, you'll learn how to use a patient registry and apply the data contained within it to make an impact. Explore the steps involved in setting up a patient registry and the important considerations for maintaining one.

Course

Health Utilities and How to Measure Them

In this course, you'll learn why it's important to measure health. You'll explore what a utility value is and how it's used to measure health, plus weigh the pros and cons of using different methods to obtain utility values and more!

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Course

Access and reimbursement

In this course, you'll learn how patient access to new treatments is obtained and how the HTA process works. Discover where and how patient groups can contribute to the process and when patient groups should start to consider access.

Course

Building a rare disease registry

In this course, you'll learn how to use a patient registry and apply the data contained within it to make an impact. Explore the steps involved in setting up a patient registry and the important considerations for maintaining one.

Course

Health Utilities and How to Measure Them

In this course, you'll learn why it's important to measure health. You'll explore what a utility value is and how it's used to measure health, plus weigh the pros and cons of using different methods to obtain utility values and more!

Course

Utility values and QALY’s for health economic models

In this course, you'll learn how health economics is used in the health technology assessment process (HTA) to measure patients' quality of life and calculate the cost effectiveness of new treatments. Discover how utility values and QALY’s are used in health economics!

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