Sentinel Stroke Audit
The Sentinel Stroke National Audit Programme (SSNAP) is a major national healthcare quality improvement programme based in the School of Population Health and Environmental Studies at King’s College London. SSNAP measures the quality and organisation of stroke care in the NHS and is the single source of stroke data in England, Wales, and Northern Ireland.
UK Cystic Fibrosis Registry
The UK Cystic Fibrosis Registry is a secure centralised database, sponsored and managed by the Cystic Fibrosis Trust. It records health data on consenting people with cystic fibrosis (CF) in England, Wales, Scotland and Northern Ireland.
International Niemann-Pick Disease Registry
The International Niemann-Pick Disease Registry (INPDR) is a disease-specific registry owned and managed by the International Niemann-Pick Disease Alliance (INPDA) with support from professional partners involved in the care of patients affected by all types of Niemann-Pick disease (ASMD and NP-C).