Patient group research and trial design
This course will explain how research and trial design takes place, the key considerations for rare diseases and how patient groups can get involved.
Throughout the course patient group case studies will highlight examples of involvement in research, trial design and drug development.
Find out more about what this course will cover in this video.
With thanks to:

Costello Medical provided pro-bono support in the creation of this course.
Resource type
Course
Skill level
Intermediate
Duration
Est. 1-2 hours
Last updated
May 2022
Resource type
Course/Video Guide/Webinar/Event Recording/Guide
Skill level
Beginner/Intermediate/Advanced/Expert
Duration
Est. X hours
Last updated
Month Year
What will you learn?
- How clinical research is traditionally structured
- The considerations and adaptations for rare diseases
- The different ways in which patient groups can get involved
Who is this course for?
This guide has been developed for patient group leaders, staff or volunteers to:
- Provide information and guidance for patient groups on how scientific research and trials are designed and run
- Aid further understanding of the challenges and potential solutions when designing clinical trials in rare diseases
- Increase awareness of where and how patient groups can get involved to have the greatest impact on research and trial design
You may also be interested in…
Resource Content
The basics of clinical research
Clinical trials for rare diseases: challenges and solutions
Where can patient groups get involved?